Friday, March 25, 2011

Things I will miss and things I will not miss

So with the pending trip to Cincinnatti on my mind I keep thinking about all the changes that are to come for our family (hopefully). I wonder what life will be like with a child who does not have a serious medical issue? I think of the milestones we've already bringing them home, having 2 wireless babies (that was a great day), cutting back on all the medicines that they were taking etc. What will our life be like?

It may sound strange to some, but the #1 thing I'm going to miss when Birk doesn't have the Trache is the smell that Birk has. Ok, you may be thinking to yourself...'uh, gross Jenny, why would you like the smell of secretions?'. Truth is I DON'T. I just love the smell of Birk. It is the only real smell that I've known on him since August of 2009. It is so unique. When I nuzzle in to give him a kiss on his neck, trying to kiss around the Trache collars he wears every day I smell it. I will miss that.

Things I know I will not miss. Carrying that stupid suctioner EVERYWHERE we go. It's heavy, it stinks and I hate it. I will also not miss suctioning Birk. I feel bad suctioning him in public. I wonder what people are thinking when I have to stick that catheter down his trache. I wonder if it grosses people out. I will also not miss how often we have to suction him when he is sick. We go nights where we get maybe 2 hours of sleep because of the secretions. That I will not miss.

God has a lot in store for our family this year. I'm so anxious to see how it plays out. One thing I do know is that he gave Birk the gift of courage and resilience. I know I've said it before, but Birk is the strongest little man I have ever met.

Monday, March 21, 2011


I just noticed that I started 2 other blogs with a comment about how I'm not so good at this blogging stuff. Now I really have to follow through! :-) This is beginning to be a little embarrassing!

I'm not so good at this blogging thing

So I started this blog several months back thinking I would document my children's lives and maybe even a little of my own, but alas....I have not done so well. We have a lot of changes happening in our lives in the coming months so my promise to myself and to anyone else who cares...I'm going to work to update much more often!

First major change is that the twins are now 2. Holy cow what a ride. I am still in complete amazement at those two. The life that they have lead in 2 short years is just amazing. What a testament to God's true blessings for us. They are both talking so much, love to read books and have a wonderful love for Mickey Mouse.

We head back to Ohio for another evaluation for Birk the first week of April. I'm very anxious for this appointment as I'm guessing we might hear if he will have surgery right away of if they want us to wait again. We are so hopeful for him, but year a bit fearful. This little boy is amazing. While having a Trach, he continues to thrive and to be honest if we didn't have to suction him once in a while.. you would never know anything was different. I'm nervous about what set backs he might experience with this surgery...but know the end result will BE TOTALLY WORTH IT. My daily prayer is for God to just hold Birks' hand (along with my Dad) and guide him to this surgery and through this. I know that if Birk can overcome being born SO early, having a Trach, he can do this.

Ok, so I know I could have probably given a much longer more extensive update, but my promise is to write more often so I need to save some things! :-)

Thanks for stopping by!