Saturday, December 17, 2011

Not much to report


Birk is awake.  He was awake on and off yesterday, but still very shaky and would cry out every so often.  He slept a lot yesterday... Last night, however, he woke up smiling and wanting to play.  He was still pretty shaky and very unstable, but what a joy to see his face.  He slept pretty decent last night with a small wake up period around 9:30 or so until around 11.  He kept trying to sleep, but was sweating or moving and just couldn't fall asleep.  When he did fall asleep he slept until about 4:45 AM.  I slept in bed with him, and for those of you that know me...that was WAY TO EARLY FOR ME.  I didn't fall asleep until about midnight and then woke up pretty early.  I wouldn't change it for anything though.  Every minute I got to lay with him, see his neck and watch him breathe on his own was priceless.

He woke up pretty smiley again this morning.  Very happy, still tired and a bit unstable, although much more head control.

Due to his progress (which still amazes almost all that meet him here) we were moved from Critical care (PICU) to the Complex Airway unit.  Here is where we will live until we get to come home.  They make this feel as much like home as they can.  Their are wagons for the kids to ride in, strollers we can push him around in, we have a mat for the floor so he can get down and play.  We were consulted by PT and OT this afternoon and when they got here Birk was still a bit sleepy.  We laid him down and showed him Mater and Lighting (the large ones that were looking out for him last week).  He immediately started smiling, reaching for them, turning to get them and showing the PT person exactly what she wanted to see.  We ended up sitting him up, which he gave us a little resistance, but in the end did really well.  It helped that Nick got out a football that my co-workers had purchased for him and they started to play catch.  It was AMAZING to see him throw the ball just the old school Birk.  It was almost like he wasn't sleeping for a week.  We then got down on the mat and he was able to sit up by himself and throw the football to Daddy and play with his Cars.  I tried to have him stand up by putting a little weight on his legs and he just couldn't do that yet.  We hope soon....

The best part of the day was when they were playing Cars and Nick started to make some car  noises and Birk imitated the noises he heard.  So we asked him to say "Mommy", "Daddy", "Addy" "Birky" ....  AND HE DID!!!!!!!!!!!!  His voice is hoarse and kind of weak, but it was amazing to hear his sweet voice and to see so many signs of my little dude.

"Praise the Lord! Praise God in his sanctuary; praise him in his mighty heavens! Praise him for his mighty deeds; praise him according to his excellent greatness! Praise him with trumpet sound; praise him with lute and harp! Praise him with tambourine and dance; praise him with strings and pipe! Praise him with sounding cymbals; praise him with loud clashing cymbals! ..."
Psalm 150:1-6 ESV

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